On May 12 (Saturday), at 5:00 p.m., a league charity match between BKS Bolesławiec and Granica Bogatynia will take place at the stadium on Spółdzielcza Street in Bolesławiec. The mother of the children, Mrs. Mirosława, approached the BKS Bolesławiec board asking for help for her sick children. Mrs. Mirosława lives in Bolesławiec. She raises her sick children alone. She is also ill and undergoing treatment because she wants to raise her children and continue their treatment. There was no need to wait long for a response from the board. The club agreed without hesitation and decided to join the effort to help. On that day, special tickets will cost PLN 10. If someone can, they may donate more. All proceeds from the match will go toward the treatment of seriously ill children: Ania and Krzyś. Cakes and sausages will also be sold at the match.
ATTENTION!
During halftime, there will be an auction of a Zagłębie Lubin shirt signed by the players. Krzysiek Kawałko, a coach and analyst at Zagłębie Lubin, arranged the signed shirt. A former BKS Bolesławiec player and friend of the club.
Previous sponsors or donors of the charity match: BKS Bolesławiec supporters, BKS Bolesławiec Club, Marcin and Edyta Świeboda’s company, Wędlin-Drobex, Transport and Forwarding MP Trans Marcin Pitera, Transport and Forwarding Auto Fox Michał Lis. Media patronage by Istotne.pl. The club thanks Jarosław Rutkowski for providing the clay station equipment (benches and tables), and the parents of children from BKS Bolesławiec for the baked goods (cakes).
The organizers encourage other institutions, companies and individuals to join the initiative.
Below, we publish Mrs. Mirosława’s appeal:
I am appealing to the BKS Bolesławiec board with a heartfelt request to organize a charity match for my two disabled children, Ania and Krzyś. I am a single mother raising two disabled children. Ania has been ill since birth. She suffers from recurrent urinary tract infections, blindness in her right eye, astigmatism, lactose intolerance and fatty liver. She has a very rare metabolic disease, hypobetalipoproteinemia, which has resulted in metabolic neuropathy in both eyes. It is an irreversible, progressive disease. She is under the care of an ophthalmologist, neurologist, urologist, nephrologist, gastroenterologist, the metabolic disease clinic at the Children’s Memorial Health Institute in Warsaw, and others. Because of her metabolic disease, she requires a restrictive, expensive, easily digestible diet low in fat and lactose. She is a young girl full of passion who loves painting, literature, history, clothing design and interior design. She loves classical and opera music and playing the violin.
Krzyś is a cheerful 11-year-old with autism and epilepsy. Like his older sister, he suffers from hypobetalipoproteinemia and follows the same restrictive diet. He has also been diagnosed with tachycardia. He is under the care of neurologists, a cardiologist, a psychiatrist and others, and also attends the metabolic disease clinic at the Children’s Memorial Health Institute in Warsaw. Krzyś is a patient at the autism clinic for children in Wrocław, where we travel three times a week for various therapies. My son loves going to school, where he has friends and favorite teachers. He loves making things from modeling clay, building with blocks and playing various board games, guessing games and puzzles. He likes watching videos and is fascinated by space and everything related to it; he also loves nature and insects.
The children require constant, systematic treatment. Krzyś needs rehabilitation, developmental support and assistance with functioning in society. Because of their shared hypobetalipoproteinemia (FHBL), both Ania and Krzyś require regular administration of imported vitamin preparations that are not reimbursed and must be paid for in full (the monthly cost for both is approximately PLN 1,000). They also take medications regularly (costing approximately PLN 300), plus travel expenses to Wrocław for rehabilitation for both children and for Ania’s school, exceeding PLN 300, and the cost of a diet for both children, PLN 800–850. I do not work because of my son’s disability. I receive a care benefit. In addition to the children’s treatment expenses, I also pay for housing and other costs. I have health problems myself. I am undergoing treatment so that I can raise my children and continue their treatment and rehabilitation. Due to our difficult financial situation, the children currently do not take the vitamin preparations prescribed for them because I cannot afford to buy them. Therefore, I ask that my request be considered favorably.
Yours sincerely, Mirosława, mother of two wonderful children.
